Feb 14, 2014

Samantha Rare Disease Day

GREENVILLE - Samantha is just one of hundreds of children with a rare disease… actually she is one out of 30 million in the United States. For 16 years she was told she had a rare disease called Infantile Neuronal Ceroid Lipofuscinosis (NCL) Battens Disease. On Samantha's 18th birthday I took her to Columbus to a specialist there who studies rare diseases. Five months and thousands of tests later we still do not know what Sam has. Like for so many other children who may never know, I am sure it is rare. Just like Samantha rare and special. Please take a ribbon and wear it. Rare Disease Day is Feb. 28.

As always if the wheel chair is on the front porch at 418 E. Main you are welcome to stop and see Samantha. You will make her day and maybe yours too. Thanks Samantha and Michael Smith.


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